Needing advice on what steps I should take to not lose hope. (37 w/PD and can't perform)
Help me reddit, you're my only hope. Or so it feels.
As my title states I am 37 and have had ED for about 18 months and Dr. Confirmed peyronies for about 12 months now. I believe the Ed was PD related from the start but my Dr. Kept trying to tell me it was stress and lifestyle issues. We know now that it really isn't the case because I have had my blood drawn multiple times and I'm in the green across the board. T is fine, not diabetic, blood pressure ok, etc.
Like many of you PD has had a severe impact on my life and I need help figuring out what I can actually do to improve things because I am having g a terrible experience with my Dr. He is so sparsely available and after my last visit he didn't paint a hopeful picture which was devastating to my mental health.
Basically he confirmed in a physical inspection that I have peyronies and he recommended we do imaging next but he can't get me in until October. This feels like an extremely long tome to wait for me. Is this anyone else's experience at the urologist?
Even then, he was pretty vague on what would happen after the imaging was done. He basically told me that I have two options, injections to get erections at home. Or get an implant. I was shocked to hear that we are jumping so drastically. It just feels like there is nothing we can do about the PD?
Right now I am on 10mg of taladafil and that helps me get erections but not long enough to perform sadly. I get maybe 3-4 minutes of sex before I'm unable to finish. My poor partner has been so supportive in this but I know it's impacting her self esteem. My Dr. Also said I can't be on taladafil forever but didn't say why? What am I supposed to do then?
I asked my Dr. About xiaflex and he didn't seem to recommend it. He said he used to do it but stopped administering it. What does xiaflex do exactly? Does it dissolve the plaque that's causing my PD?
I'm basically at the point where I will do anything to gain my sex life back. Like I mentioned I'm only 37 and I just don't know how this could be for the rest of my life. Please feel free to dm me with stories and advice.
To recap. I want to know
-what can I do to get erections long enough to have sex
-what does xiaflex really do? Is it more risky than beneficial? Is the cost too much?
-should I seek a second opinion if my Dr. Is making me wait months in between appointments?
Any help is vastly appreciated