r/PeyroniesSupport

Does anybody have any good links to actual peyronies hinge effect photos, not interested in the medical generated diagrams

As it stands right now I feel like I'm completely fucked and don't have any meaningful solution going forward. I have a plaque on the top middle right side of my shaft that feels fairly large and also very noticeable girth loss and indentation on the left underside of my shaft. Overall my penis curves both to the left and upwards. The left curve isn't too bad right now but the upwards curving is getting worse, as it feels physically tense when I try to push it down.

I also have burning nerve pain around the indentation area and even numbness that comes and goes. I went to a urologist about 5-6 months ago because I had noticed the plaque and my penis curving more to the left and upward than usual (I always had a slight left and upward curve but it was more pronounced at that point) and he basically just said to wait a year to see if things get worse, which looking back feels like terrible advice since you'd want to make as much progress on it while it's still in the acute phase.

He didn't even prescribe me anything and I had to call the office just to convince them to prescribe me some tadalafil. Fast forward these last months and my symptoms have only been getting worse. The numbness and nerve pain wasn't an issue my first urologist visit but has showed up around 2 months ago now, and the pain, curving and girth loss has only been getting worse as well.

I actually ended up having a second visit with a different urologist and he seemed to know a bit more about peyronies, but when I told him about the symptoms I was having all he really did was feel my penis for about 15 seconds and said he didn't feel any plaque, even though I literally told him where the spot was and that it was a noticeable lump. He was more concerned about the nerve issues and so ordered a cat scan of my waist area to check for a pinched nerve. Looking back I should have told him I want an ultrasound instead to check for possible plaque and scarring, but I fucked up.

Anyways after that appointment I feel completely lost. I missed the opportunity to order an ultrasound and feel like my curve and pain will only get worse. What's more is I'm pretty broke at the moment which is basically a death sentence for this disease since the only viable treatment options are either expensive surgery, expensive injections, or expensive traction devices. Even the supplements that people recommend on this sub are pretty pricey, especially if you buy them all at once, and it's not like it's a guarantee if those even work or not.

The only "cheap" option I've heard is to do manual stretches to help with the curve but even then I have no clue where to find the proper exercises or what plan to follow. If you guys could recommend me a manual stretching exercise plan that would be great. I've also thought about seeing a different urologist who's more understanding and experienced in this field, but my health insurance isn't that good and I don't even know where I would look. All in all I just don't see myself getting better at all honestly. The real pain is that I'm only 22 and haven't even had sex yet, and with the way things are going it's probably gonna stay that way.

I have seen a urologist twice and this wasn't even mentioned by them, seen people have it done but not sure where they were from on here, I am looking to book another docs appointment soon so did you ask them? Or ?

(20) I’ve had this shit since I was around 15. I get periods of euphoria because I see improvement and pain goes away. Key word “Periods” pain comes back after thinking I can wank it again or keep trying vacuum therapy. On the verge of suicide to what seems every 3-4 months. Anyone have any ways to help the pain? It’s just an ongoing dull ache 24/7 I feel like a rabbied dog 😂 shit really sucks. I’ve been so desensitized to this whole thing by now it’s almost funny. Never thought my life would be like this so young. I haven’t lost hope yet but today is one of those days haha..

I'm not sure if my curve is technically Peyronie's, but my curve is to the right. It's more of a constant curve from base to tip rather than an intense curve in one spot.

Question: How do I straighten out the right curve, while keeping my upwards curve?

I love my upwards curve.

So been using for 3-4 weeks now, first 3 weeks I did just the basic stretch forward 15 minutes and downwards curve on the 2/3rd setting 15 minutes, I've noticed already about a 1/2 increase in erect length but now I'm "leaning" to the left now, is this a normal thing to happen while breaking up / stretching the tissue? That makes sense to me but I want to make sure I'm not causing more damage.

Going to see my doctor next week but I'm curious if anyone else had a similar issue pop up?

I am 30.

While having consumed Tadalafil, I was having sex with a woman discreetly.

During intercourse, my penis accidentally bent. It bent in upward direction. It pained slightly. There was no loss of erection or bruising.

Later that night during nocturnal Erections felt pain in upper shaft.

.

Will I 100% get Peyronies now? How to prevent it?

So im gonna try doing 10mg daily cialis, 5mg in morning and 5mg before bed. 5mg is unfortunately not cutting it for me the way I'd like. Anybody else try this protocol and had some success

Hello, haven’t really seen much on HA in this sub.

Was wondering why this isn’t sought out more by peyronies sufferers as it seems like a great option to add girth and seems semi-safe from the research I’ve done on it.

Have any of you had first hand experiences with it? What was it like?

Hi guys,

My 26 year old BF has PD and has been trying all sorts of things to get better. He is struggling really bad feeling like life is over. Life hasn’t been fair to him and I feel so bad for him to be going through yet another thing.

It hasn’t affected our sex life that much. He can still get hard and have an orgasm fairly easily. But it comes with pain every time. He has lost some length and girth and has a slight curve.

We met just as he was getting diagnosed. I very much love him and our sex life is still very fulfilling to me. He is still so attractive to me and it honestly doesn’t change how I see him or feel about him at all.

I have tried comforting him when he is down but it feels like I seem to make it worse. What can I do to help him?

Timeline

• ~5.5 months ago: first nodule, lateral right shaft, 3–5mm, just below the corona. Painless.
• ~3 months ago: second nodule, lateral left.

Two urologists diagnosed PD by palpation.

• Right-side indent developed on erection, with a constricting sensation that eases mid-erection and returns. Last week, left side developed an indent too. Now a circumferential hourglass just below the glans, glans not filling fully. Felt stable until then.
• No pain at any point. Erections and morning erections preserved. No significant curvature.

Taking (3 months, oral only)
Curcumin 95% + piperine, CoQ10 500mg (+Mg, astaxanthin, zinc, K2), silymarin 400mg, Kanchanar Guggulu 800mg, Centella asiatica 600mg, vitamin E 400. Topical diclofenac 4% AM (stopped after skin irritation and peeling), Bee Propolis

Looking into: tadalafil, traction therapy, VED, intralesional injections**,** ESWT/therapeutic ultrasound, vacuum devices, oral proteolytic enzymes (bromelain/serrapeptase), TCM formulas, heat therapy, water fasting.

Questions

1. Anyone present with hourglass/indent rather than curvature? What worked?
2. Thoughts on the above mentioned treatments?
3. Anything missing from my list that you would suggest?

Thanks. Any input appreciated.

Im 3 and half years in and still deal with mild aches and very active inflammation. Im starting to think I may just be completely stuck with it 😕

21 M. I have lost an inch of length (I have 0.9 inch plaque directly underneath the head as well as two others).

Because of the plaque I am largely unable to get erections. I get absolutely none at night (been going on for months and very concerned about this). I get partially hard if I’m aroused but am pretty much unable to get fully erect.

I went to urologist and got prescribed cialis but it hasn’t helped at all. Been on it six weeks. I have a month until my next appointment which is only a phone call.

I don’t know what to do. I’ve lost around an inch and I’m only 21, I am terrified I am gonna lose even more.

Now I’ll start by saying that I by no means think that Peyronies caused this habit. It was moreso how I coped with it.

I am married and I often feel a lot of shame and embarrassment about the size and curve of my penis now. I also feel extremely anxious about causing further damage. For these reasons, I began to take matters into my own hands (literally and figuratively) more and more often. I didn’t have to feel embarrassed when I was alone and I could control what happened to my penis so I wouldn’t risk more damage. This coping mechanism eventually turned into a habit where I masturbated daily and withdrew from frequent sexual advances with my wife.

Fast forward to a month ago and I decided enough is enough. I haven’t masturbated once over the past month and I’ve committed to seeking connection and intimacy with my wife instead. I’ve forced myself to let it be seen and touched in all its small and curved glory. I won’t say I’m healed, but I’ve found a path forward. Connection with my wife has been better than at any point since my diagnosis over two years ago.

This shit is hard, guys, and it can impact sexual intimacy deeply. I think I’ve seen some progress though.

I haven’t posted in a few months my follow up.

At a year, two days ago, I must say I’m happy with my progress and implant.

Since late January, I was diagnosed with cancer and been through hell with chemo and radiotherapy at the same time. Lost 30 pounds of weight because of it. I’m currently in amends and in the re evaluation to see what’s the next steps. Between the hassle of the treatments and the effects of the chemo and radiation therapy kept me away from cycling because it caused me pain. Currently I’m being evaluated to see if surgery is necessary since it was caught very early. I’ll know more in a couple of months if I need surgery too but it seems that it disappeared. Hurray!

Started chemo and radiotherapy mid March until May, lost 30 pounds and I really thought it was the end for me.

For the last month or a bit more I restarted cycling and thought it would be difficult but I will say it’s not that bad.

Didn’t loose any length or girth and that is a good thing.

Will try to keep posting more in a monthly basis. Will answer questions, and if I feel it’s too intrusive I would prefer the question privately.

Best wishes to the new bionic guys out there and wish you luck. If you are going to ask questions please read my previous posts to catch up with my story.