r/PeyroniesSupport

I'm 48 years old.

I've always had a straight penis but October last year I noticed a side bend (not dorsal) to the left which is about 30 degrees (11 o'clock).

It appeared out of nowhere and I cannot recall any recent moments during sex where it could have occurred.

After googling it led me to this sub.

After reading other's experiences on here I'm not sharing the same symptoms:

• No pain (sex and masturbation are still pleasurable)
• No noticeable lump - though the left side does feel slight firmer when erect
• It appears to be stable and isn't getting any worse

What's different and which I haven't seen anyone on this sub mention is, my left testicle (which is on the same side as the bend) tends to go into my belly when I have an erection. Again something I've never experienced until recently. It's like the left side of my body is pulling things inward.

This is leading me to think (or 'hope') it could also be an alignment in my body. Wishful thinking perhaps but trying to be optimistic.

What is the best way to find out if I have PD?

I'm from the UK. If anyone else is, is it easy to get diagnosis on the NHS or best to go private?

Thanks for any help.

PDI5 Inhibitors + SERM seem to have a combined effect in the acute phase of the disease lowering final curvature!

I was researching on my own and was one step before taking off label SERM in January, but was too afraid of the eye related side effects it has...

...too bad, this would have directly been at the start of my new active phase so no one knows if that would have stopped is early...

I’m in my 40’s dealing with this shit, and I’m absolutely FLOORED that not once in my life has anyone warned me… that with just one wrong move, my dick might decide to slowly - over the course of a year and a half - transform into a fucking deformed gremlin… and every goddamn erection will feel like trying to burst through a fucking concrete wall. This is not fucking okay, and it’s definitely not okay that every single doctor I’ve seen tells me that they can’t do shit during the “acute” phase. Are you kidding me? There’s nothing cute about this fucking shit. Fuuuuuuuck.

Thanks for coming to my Ted Talk.

Has anyone with an hourglass got experience using a VED to try and restore girth? If so, what protocol did you use (pressure, hold time, cycles, total time per day etc).

Since PD started 3.5 years ago, I have had discomfort when flaccid, that comes and goes. I have been using a VED for two months to try and restore girth due to a thin distal end due to PD. I am using low pressure (2inHg) but find that I experience more discomfort during the day. I'm trying to figure out whether that is just nerve irritation due to the tissue responding to the pumping, or whether it is discomfort signalling that the pumping is causing harm.

My PD has progressed slowly but consistently over 3.5 years. I am worried that because changes happen slowly, I won't know whether VED is causing harm until a couple of months down the road when I see the girth reduce more.

I have tried so many treatments and have not found a single one that works. If anyone has any suggestions on what VED protocols work, or what other treatments they've seen be successful, I would be glad to hear about them.

Anybody had penile implant ipp or mpp , who had hourglass penis shape due to pd , did you lose any size after implant?

2 yr hx PD used Restorex a couple weeks carefully and as per directed. After stopping, I'm pretty sure the base is more unstable with poor support.. Not sure it's safe for sex. Is it likely I messed up some ligaments or is it unrelated?

I’m having a hard time accepting that I have Peyronies. I hate that it has affected me on such a level that even the things I used to enjoy doing no longer provide any satisfaction.

I’ve come to the point where working out is the only thing I’m still doing and I feel like I force myself to stay disciplined otherwise I would quit that as well.

I hate that I’ve placed such an importance on sex that I’m losing the meaning of pushing myself to do other things all because of Peyronies. I’m looking for advice as how to navigate mentally through this disease.

About a year ago like most of yall I was depressed over my peyronies - I have hourglass deformities and some loss of length.

I was doing all the usual BS… tugging, Restorex, vitamin e, etc. Nothing.

Then I found out I had prostate cancer, and long story short, the surgery left me w an 1” shorter dick and severe ED.

It’s about a year since my cancer surgery and I’m scheduled to get an implant - it will restore my sexual function AND help address the hourglassing. Two birds one stone. Probably won’t recover pre surgery length, tho.

I had a glorious penis my whole life til the last couple years. Honestly looking forward to putting all this being me and getting back to normal sex.

My IPP surgeon is on the team at Boston Scientific and they are less than 36 months from being able to place Bluetooth pumps which will be abdominaly placed. All AMS 700 (and 800 - artificial urinary sphincters) will be pump-able on an app on your phone! Yes, retrofits as an outpatient procedure can be done and no more need for a manual pumps in the scotum. They will be chargeable via a pad across the lower abdominal area and take less than an hour to fully charge.

Really dont wanna try xiaflex after all the negative and mixed reviews that im seeing if it comes down to it. Ive gotten a ultrasound and mri and no plaque was found and they say my penis shows up normal even tho I have around a 10-20 degree curve towards the right and penis is rotated to the right a little.

*Injury happened during sex when she was on top I believe but there was no popping or lost of erection, I helped her adjust after I felt my dick hit a wrong angle but it was nothing bad. Happened on march 21st 2026 and at the time I didnt think I was injured and that I was just a little sore and I havent had sex in a long time. (This happened on my birthday wtf).Got in for an appointment on march 30th and start going down the rabbit hole with research and seeing doctors and urologist and its been the most draining shit ever.

*PAIN- worse shit i been thru. The pain i start feeling was shooting down to my left leg all the way thru my foot and I said to myself i think i damaged my nerves too. My penis was feeling all types of pain…tightening,feel like it was being stabbed by needles,tingling and static feeling, and it drained me for basically a month and had me struggling to move because it made it worse and It felt like my penis would burst. Really kept thinking I would rather die than to keep feeling that pain and then my dick was changing so it made it even worse. Its been better but now its more like a bruising pain and sometimes a nerve type feeling.

I got the mri done last month and got results back around april 12 and everything came back clear. One urologist I seen said there was nothing else he could do except perform surgery or give it time and it really seemed like he would of liked to perform that surgery…claimed he didnt want to have me suffering from that pain.

Fast forward to april 28 I start taking q10, L carnatine, L citruline, orange iodine and dsmo. Wish i would of started earlier but i had no idea what i was dealing with and I never liked taking too many supplements or medicine. Ended up with stopping the dsmo and iodine for right now and might resume using it but not as a daily thing. Doctor gave me motrin but i was inconsistent with it at first because i felt it didnt help at all and now ive been taking it consistently and I feel it may help along with the other things ive been taking.

The other urologist didnt put a label on it but my most recent urologist said im likely in the acute stage of peyronies. She gave me cialis and told me to get a ved along with taking motrin then see her in 6 months to see how things are going.(This woman has been better with the direction I should go than the other 3 urologist I’ve seen). Im tired and if i have plaque that comes up I dont wanna deal with injections that might make things worse like losing length or it doesnt help at all. The risk is too high to me and im seeing more cons than pros with the research on xiaflex. Im thinking i would rather get a implant than go through the needles which I know is a last resort but I dont wanna deal with possibly more damage then have less to work with if i ultimately have to end up getting one.

Im also frowning on restorex as i seen some post with people that ended up hurting their self more or it not working and just causing extra stress, also im a grower so i thought about that too.

Is there anything else that you guys recommend me trying during the acute phase?

I am looking for others with similar symptoms to me, to hear about their experiences in dealing with it.

I have had peyriones for 3.5 years. Since it appeared, it has not stopped. Slowly the tip of my penis has become narrower due to scarring around the shaft right near the glans. The glans is a lot smaller because of it. My penis now tapers into quite a small end.

I have pain when flaccid that comes and goes seemingly randomly. Usually a stinging sensation. Like my nerves are irritated. I feel it more when stressed.

Has anyone else experienced the same deformity and the same sort of pain? I am treating it using a VED, but because of the random fluctuating pain, I cannot tell whether the VED sessions are causing the pain when it flares up.

Has anyone with distal thinning used a VED to restore girth, and if so, what pressure and cycling protocol did you use (hold time, number of cycles etc).

Thanks for your help. I get mixed advice from specialists and from Dr Google, and now I am completely confused.

Do you guys have your dick go up or down in the pants? trying to figure out how i should have it. Currently in acute phase and don’t wanna make it worst.

Thanks!

Hello, I have a situation and wanted to ask in this subreddit. For context, I'm 19. I was really stupid and messed up really bad as last year in the summer, I got really addicted to p*rn and was basically vigorously you-know-whatting every day, sometimes twice a day (before then I think I did it once a month maybe sometimes none). What happened eventually was I started to get a really bad pain at the base and some on the side, but it went away after a couple days, however, it started curving left which I know for a fact was not there before (at least there was a small curve, but it dramatically increased). I stopped any sort of activity for the last month. However, when my it gets hard, it basically still curves left a lot, and its always tight on the left side like i can physically feel a tightness. I know in many cases people have scar tissue and such, but I can't feel any kind of tissue. However, I do know something is wrong as an app said it curved around 30-45 degrees (it was giving me different measurements each time but there is a definite curve), and my right side looks fine but left side doesn't seem to be straight. I really don't want to have to spend the money to go see a doctor if I'm not absolutely sure (and I'm also still on my parent's plan so I don't want them to know unless its an absolute emergency), which is why I'm asking if other than the curvature if there is any way to determine if I have this condition. I'm also really scared because last summer I did stop for a week and it returned to normal, and when I started again this became a permanent thing. When flaccid and around a quarter erect its fine, but after that it randomly starts bending left and seems to get thinner. Basically, I'm wondering if there is any other signs of the disease other than curvature, if I should wait another year to see if it gets better since its only been a month since I stopped, and also if it will cause any changes permanently. Any advice would be appreciated.

Hey guys.

25 year old male here - I started having pelvic floor issues about 4 months ago. Around then, I noticed a small bend in my erections but nothing too crazy so wasn't worried. Symptoms were mostly pressure in the rectum, felt like I needed a bowl movement 24/7 etc.... eventually, couple weeks in I started getting pain in the penis. I attributed it to pelvic floor dysfunction, but noticed a circumferential band / hard circular vein looking thing that felt very tender and painful to touch. Almost looks like a circumflex vein.

Sure enough, I got an erection last week and the bend was WAY more pronounced. I was guessing about 45 degrees. The tender spot also became way more painful to touch.

I went to urologist who pretty quickly diagnosed me with Peyronie's.

I'm so young, and also suffering from pelvic floor dysfunction symptoms that had me basically bedridden. Adding this to my plate feels completely insane and discouraging. I cry most days but I'm trying to be brave and get through this with a smile for the sake of my family.

I'm about 4 months in from first noticing symptoms. It's still painful tender, and the plaque isn't especially hard yet so I imagine im in the acute phase.

I have a couple of questions and would appreciate it so much if you guys could provide some help and guidance, especially those who have had success stories correcting their curve.

- My questions are:

1. I already suffer from pelvic dysfunction, so would really like to avoid surgery and more trauma to that area. What are my best bets for treating this? Xiaflex? RestoreX? Especially considering the timeline, i'm in a little bit of a rush to start treating this, but want to make sure I'm doing it the best way possible.

2. How often is the curve stabilized 4 months in? It's already pretty damn pronounced and I'm terrified of it progressing. This anxiety is feeding into my pelvic floor dysfunction and causing more pain all around. I'm basically just in hell.

3. What can I do to avoid further trauma to the area? Sleep on my back? It's painful to sleep on my stomach. And in general it hurts when it rubs on clothing etc.. pretty much all the time. Should I put ice on it? Heat? What's the move?

I'm grateful for this reddit forum and the mods and everyone here who helps each other. Please provide some guidance for me as I'm completely gutted, and at 25 years old this pain and anxiety is having serious consequences in every aspect of my life.

Thanks again.

Hi everyone,

I’m 57 and was diagnosed with this condition in April. My consultant has recommended Tadalafil.

One thing I’m anxious about is erections being painful already because of the condition. From what I understand, Tadalafil is similar to Viagra and helps you get erections more easily.

For anyone who has taken it:

Does it make erections more painful if you already have pain?

How long does an erection usually last?

Does it cause spontaneous erections or only with stimulation?

Did the pain improve over time or stay the same?

. Will it be normal again?

I’ve never taken this type of medication before, so just trying to understand realistically what to expect.

Thanks

24M . I recently started taking Strattera (atomoxetine), and I m wondering if anyone knows if there s any link between this medication and PD or if it can negatively affect the disease long-term.
Fortunately, I don’t experience erectile dysfunction from it (which I know is a very common side effect), only weaker erections sometimes. However, I do get cold extremities, which points to peripheral vasoconstriction.
Does this vasoconstriction significantly affect blood flow to the penis? Could this reduced circulation create a bad environment for the plaque or potentially trigger a flare up down the line?
I know the standard protocol for penile blood flow is low-doseCialis, but I can t take it because i suffer from tinnitus and I ve read that PDE5 inhibitors can worsen the ringing so I want to avoid that risk entirely.
Has anyone taken Strattera while having PD? Does anyone have alternative recommendations for improving blood flow and protecting the tissue ?