r/PeyroniesSupport

For curvature that begins near the base of the penis, the restorex manual recommends a counterbend of 30-60 degrees with some rolled up gauze between the device and penis. Looking to see if anyone here has treated similar curvature and if they used the recommended method found in the manual or if they did anything different. I started about a week ago and just want to refine my routine to maximize success. My curve is about 40 degrees downward and the bend starts about 2 inches away from the base. Thanks!

So about 3.5 months ago, I was having sex with a friend and she rode a little too hard, it slipped out, and she came down hard on my dick. No pop or anything audible, but it didn’t feel great. We finished up that night, and even went again the next morning. However, a couple days later, I noticed a curve starting to form when erect. My urologist said it was minor and that surgery wasn’t needed, just gave me some anti inflammatory pills. Today, the curve has mostly gone away (still have a little bit of upward curve but not too bad) however, my erections are now about a full inch shorter than they were before (flaccid I’m still around the same size). The urlogist said it could take around 6 months to heal. Do I have any hope of returning to full size naturally? Or am I forever gonna be shorter unless I opt for some sort of enlargement procedure?

This is NOT asking for a diagnosis. Hopefully asking things in this way are okay, if not please edit this, but I have nowhere else really to get knowledgeable advice, and I live in America and am not in a position to seek medical help, I've tried.

Just last week I had some hypersensitivity and pain, and when I checked myself I noticed a curve, later measured to ~30-35 degrees. I've taken a week break from any sort of activity, paranoid to even look at something that might give me an erection so I could heal. The other night I measured a ~25 degrees but this morning it looked like it was more, maybe a bad measurement still unsure (EDIT: yeah likely bad measurement).

I'm going through some severe psychological distress but I had some people to vent to about it and feel a little better but I'm just not sure what I should be doing, I've heard alot of mixed things about supplements but I'm taking them anyways. I've started to take working out more seriously as well.

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My main question is about the acute phase, how much pain is normally associated with it, because I feel at worst a minor ache/sore, and still a bit hypersensitivity (which is getting better over this week), simply getting an erection when I measure does not seem painful but I feel its not quite nothing either, dull ache. I've seen others mention cases where people thought they had it, but did not, what is that like and why is it so convincing? Assuming it might be Peyrones, what should I be doing? Waiting it out? Being careful or avoiding sexual tendencies? I bought a traction type sling with a vacuum cup and strap, but I'm not sure if I should use it yet, I've seen conflicting information.

I guess an open ended, if you could go back and tell yourself to do XYZ for those of you that have it, what would you advise yourself on.

https://preview.redd.it/hd49rfpniqbh1.png?width=630&format=png&auto=webp&s=ddf112dadf5bc289909c8e53e71b8b85e2edf8d4

Hello everyone, for my own personal wellbeing I won’t be using my government name. But you can call me Z, I’m 20, and I underwent penile plication. I knew from a very young age something was wrong with my genitals, and like many of you it caused a lot of anxiety, depression and insecurity. I started to look for solutions and soon realized that nothing but surgery would fix my issue.

I will admit I didn’t try the other options like pills and whatnot, I felt that they wouldn’t help so I didn’t even invest my money. (Also I had no money).

The entire surgery was incredibly expensive, 68 thousand dollars, I’m fortunate to be born in America and to have amazing insurance from my university that helped me to be able to pay for this.

I’m writing this to say that the journey has been tough, but to anything thinking about surgery I say it’s worth It. Ik when I was younger I was desperate to find stories of people who were also going through this so know that you’re not alone.

I’m currently on week 3 of recovery, so I’ll give updates and if you have any questions feel free to ask. My advice is if you are young and live in a city, get it checked out and if it’s deemed medically necessary, you can get a lot of the procedure paid. Also universities give some of the best insurance.

My problems first started over a year ago and I thought I was in the stable phase, but after some recent rougher than usual sexual activity I developed a new smaller indentation where the pressure was greatest. Now during masturbation I can feel this area hurts a little bit similar to at the very start.

Is this caused by the plaque deforming healthy tissue and creating micro tears? Or if the plaque was totally gone, would we still have very fragile dicks forever more?

Has anyone else had reinjuries much later after the original incident?

Meus amigos até agora, só usei bomba, mas não senti mudança alguma.

Meu pênis é um pouco curvo, descobri a doença na pandemia, não tinha curva agr tenho, e afinou aquele lado, vou começar a tração, mas tenho medo de piorar ainda mais. Quais cuidados ter com a tração? Deve ser feita, tomando vitamina E ou o Cialis?

Agradeço desde já

Hi everyone,
I’m a 27-year-old male with Peyronie’s disease and I’ve been under the care of a specialist since November 2023. I’ve had serial ultrasounds and elastography performed by the same clinic, and the results have shown consistent improvement at every follow-up.
Ultrasound results
November 2023 (diagnosis)
Plaque: 13.3 × 8.8 × 2.8 mm
Volume: 0.172 cm³
Elastography index: 2.66
Non-calcified plaque
May 2024
Plaque: 10.5 × 7.2 × 2.8 mm
Volume: 0.111 cm³
35% reduction from previous scan
Elastography index: 2.06
November 2024
Plaque: 7.3 × 5.5 × 2.6 mm
Volume: 0.054 cm³
51% reduction from previous scan
Elastography index: 1.90
July 2025
Plaque: 5.5 × 4.0 × 2.5 mm
Volume: 0.029 cm³
46% reduction from previous scan
Elastography index: 1.36
Overall, the plaque volume has gone from 0.172 cm³ to 0.029 cm³, which is approximately an 83% reduction.
Treatment
I’ve been treated with:
Peyflog
Sclero-Hyal
Alpavita EC
There have been occasional interruptions due to shipping and stock issues, but overall I’ve remained on treatment long-term and my scans have consistently improved.
My situation
Despite the objective improvements on imaging, I still feel like I have:
Residual hourglass deformity
Some perceived loss of size/girth
A penis that doesn’t yet look normal to me
My doctor has gradually extended my follow-up appointments from every 6 months, to 8 months, and now to 12 months, which I assume is a positive sign.
My questions
Has anyone here had scan results showing this level of plaque reduction and then gone on to achieve a normal-looking penis again?
Did your hourglass deformity continue improving after the plaque became very small?
Did anyone regain lost girth or length after the plaque was mostly gone?
Has anyone achieved what they would consider complete or near-complete recovery?
Based on these scan results, would you consider me close to the finish line or is there still a long way to go?
I’d be interested in hearing from anyone with similar ultrasound findings, especially those who had measurable plaque shrinkage over multiple years.
Thank you.

Help me reddit, you're my only hope. Or so it feels.

As my title states I am 37 and have had ED for about 18 months and Dr. Confirmed peyronies for about 12 months now. I believe the Ed was PD related from the start but my Dr. Kept trying to tell me it was stress and lifestyle issues. We know now that it really isn't the case because I have had my blood drawn multiple times and I'm in the green across the board. T is fine, not diabetic, blood pressure ok, etc.

Like many of you PD has had a severe impact on my life and I need help figuring out what I can actually do to improve things because I am having g a terrible experience with my Dr. He is so sparsely available and after my last visit he didn't paint a hopeful picture which was devastating to my mental health.

Basically he confirmed in a physical inspection that I have peyronies and he recommended we do imaging next but he can't get me in until October. This feels like an extremely long tome to wait for me. Is this anyone else's experience at the urologist?

Even then, he was pretty vague on what would happen after the imaging was done. He basically told me that I have two options, injections to get erections at home. Or get an implant. I was shocked to hear that we are jumping so drastically. It just feels like there is nothing we can do about the PD?

Right now I am on 10mg of taladafil and that helps me get erections but not long enough to perform sadly. I get maybe 3-4 minutes of sex before I'm unable to finish. My poor partner has been so supportive in this but I know it's impacting her self esteem. My Dr. Also said I can't be on taladafil forever but didn't say why? What am I supposed to do then?

I asked my Dr. About xiaflex and he didn't seem to recommend it. He said he used to do it but stopped administering it. What does xiaflex do exactly? Does it dissolve the plaque that's causing my PD?

I'm basically at the point where I will do anything to gain my sex life back. Like I mentioned I'm only 37 and I just don't know how this could be for the rest of my life. Please feel free to dm me with stories and advice.

To recap. I want to know

-what can I do to get erections long enough to have sex

-what does xiaflex really do? Is it more risky than beneficial? Is the cost too much?

-should I seek a second opinion if my Dr. Is making me wait months in between appointments?

Any help is vastly appreciated

I had my first round of Xiaflex injections recently, second was 9 days ago. I still have a little swelling and bruising as well as some soreness. I’ve started the modeling stretches which are mildly painful. For those of you further along with the treatment, how long did the bruising, swelling and soreness last? I’m sure it will be the same for each round. Just wondering when my penis might start to feel normal again.

My bf of a few years developed Peyronies about 1.5 years ago. We have not had sex of any kind in 4 months now, which is the longest we have gone without sex. He will not perform oral or even touching my privates because he says it will give him a painful erection. I notice that almost every women here seem to have partners who are still willing to turn them on sexually. My partner only pecks me on the lips. Even deep kissing is off the table. I really need to know if this has happened to other women who are in relationships with men with peyronies and if they still receive sex in other ways? I feel like I am disgusting to him at this point. I have shared my thoughts and cried to him about this, but he still will not try other forms of sexual pleasure. Please help.

I (22m) had my urologist appointment today. He basically said that it’s plaque/scar tissue and if I can still have sex then to leave it and there’s nothing I can do. He said there is surgery options but not to do them as you can lose length. He also mentioned shockwave therapy but said it doesn’t work. So I basically just have to leave it and do nothing? No ultrasound or anything he just felt the lump and said that.

I’m a little bit lost and depressed as I’ve been going through this thread and am scared about my curve getting a lot more sharp.

People in earlier times must have also suffered from Peyronies. At that time, there were no modern methods available to treat it. Probably there were natural medicines, herbs and all that were used for such problems. What are your views on opting for those methods to treat it?

I have an upcoming appointment at the Mayo Clinic in Rochester, MN, for the first two Xiaflex (collagenase clostridium histolyticum) injections into my penile scar tissue—scheduled on consecutive days.

The cost per injection is $16,000, totaling $128,000 for the full series of 8 injections. The expense is solely for the medication, not administration fees. My insurance (Cigna International) may or may not cover it, and even if it does, my premiums could skyrocket afterward.

If insurance doesn’t confirm coverage, I’m considering canceling and seeking alternative treatments in Shanghai, where Xiaflex isn’t authorized but other options may exist. I work about half the year in China on contracts.

Has anyone dealt with Xiaflex costs, insurance hurdles, or alternative treatments? Any advice would be greatly appreciated.

I'm doing traction and vacuum pumping. My pump has a gauge that shows the pressure. I'm finding that sometimes the gauge can be at the same pressure, but with an entirely different result. One day it may really stretch things out where I can tell it's working effectively. On another day (again, at the exact same pressure on the gauge) my penis will not be stretched at all. Am I doing something wrong the times that happens?